We are here to help YOU!
The Path to Prevention
Your determination to:
Reduce your body weight
Become more physically fit
The Path to Stroke Recovery
Your determination and:
Our stroke education initiative
Our post-stroke case management and
Why Stroke Recovery Foundation is Needed
Stroke is a serious disease which is both a significant killer and long-term disabler as the data below shows. It impacts many, in large and small ways, striking men and woman, young and old, rich and poor, black and white! This is the tornado disease!
Typically after stroke, a patient spends time (one to three weeks depending on the stroke's severity) in a hospital where they are stabilized, and receive their initial therapy depending on the deficits created by the stroke. They will receive physical therapy, occupational therapy, speech therapy, and perhaps psychological therapy.
Upon being discharged from the hospital survivors will continue their rehabilitation for a few weeks or months, at an out-patient facility convenient to their residence. In some cases therapy will be performed at home instead of at a facility. We believe that the latter is problematic for the great majority of survivors because few homes have the proper equipment for successful rehabilitation.
For nearly all survivors insurance reimbursement for out-patient therapy services terminates, often prematurely. Gains, often significant gains, can still be made, however the insurance termination becomes a barrier to progress, either financially or psychologically, or both.
Survivors and their caregiver partners are now on their own. And in many cases they are desperate to continue their recoveries! It is particularly at this stage that Stroke Recovery Foundation comes to the rescue with supportive education, coaching and resource navigation services which facilitate continued progress.
Now let’s focus on the data! These are not opinions – they are the:
The Facts of Stroke Life
You may find some of this data surprising as we did.
There are a lot of strokes:
• There were 800,000 strokes in America the last time someone counted a few years ago. This has, and will continue to increase during the coming years due to baby-boomer demographics. Just in Lee and Collier Counties there are about 1,800 stroke hospitalizations per year.
• 34% of strokes occur in people under 65, 10% are under 50 - that’s 80,000 + people under 50.
• Stroke kills almost 130,000 Americans each year—that’s 1 out of every 19 deaths.
• One American dies from stroke every 4 minutes - the fifth most lethal disease!
• It is a complex disease – there are many types and intensities of strokes.
• 85% of all strokes are ischemic strokes, when blood flow to the brain is blocked by a clot.
Most of the other 15% are brain bleeds of one type or another.
• Surprisingly even children have strokes! Typically, over 3,000 juveniles have strokes that are diagnosed.
• Pediatric stroke is an issue and often goes undiagnosed. For many, it’s just not on the radar! There are many more juvenile strokes!
• Stroke is an orphan disease – falling between cardiology and neurology. Did you ever hear of a strokeologist?
• And there are many millions of people living with the after-effects of past years’ strokes, many are living in SW Florida.
Stroke can be considered a woman’s issue – did you know that?
• 55,000 more women than men have strokes;
• Not discussed however - more women than men are stroke caregivers – your life just changed!
• Twice as many women die from stroke as breast cancer
• Woman are less likely to participate in clinical studies than men.
The societal costs of stroke are significant!
• Stroke costs the United States an estimated $36.5 billion each year. This total includes the cost of health care services, medications to treat stroke, and missed days of work.
Stroke is the number one long-term disabling disease
• No two strokes are the same! Rehabilitation can be lengthy and complicated.
Research expenditures are deficient in the context of the diagnoses data and the long-term survivor/caregiver lifestyle implications!
o This is particularly the case with rehabilitation research.
Why is stroke not on this list?
FEDERAL SPENDING FOR RESEARCH
Cancer $ 5.42 billion
HIV/AIDS 3.01 billion
Aging 2.49 billion
Heart Disease 1.26 billion
Diabetes 1.04 billion
Autoimmune Diseases 838 million
Obesity 834 million
Breast Cancer 674 million
Liver Disease 610 million
Alzheimer’s Disease 566 million
Kidney Disease 565 million
Source: National Institutes of Health - Centers for Disease Control
Printed in an article – Brain Trust in Florida Trend Magazine – 3/2015
Across America, stroke services are very geo-centric which makes the disease quite difficult. For those of us who have been afflicted, there exists an uneven patchwork of stroke rehabilitation services. This uneven treatment is an important reason for the Foundation, as the website will over time, provide a baseline for assistance and support.
IT’S TIME - JOIN US AS WE IMPROVE STROKE PREVENTION and OUTCOMES !