Stroke is a complex disease so it was not at all obvious how I can make a difference. Unlike many other diseases, there is no template for stroke. Each stroke is different and each outcome is different! There are many types of strokes, many causes, and many degrees of disability. To top it off, the time it takes to be diagnosed and treated impacts the likelihood and seriousness of the stroke’s long-term effect on one’s life (the caregiver partner’s life also).
In the context of all this complexity my mission – the mission I created is to improve post-stroke outcomes and lifestyles. But frankly that sounds like “motherhood” so I puzzled – JUST HOW? Just how should I address the PROBLEM?
Just for some perspective about where I am coming from – for me, the bad news was having a stroke 20+ years ago. The good news – insurance was different than it is today. I had much more therapy of all kinds – speech, physical, aqua, occupational, and therapy for the therapy than is available today for the very great majority of survivors and their caregivers. My therapists, in many cases were my coaches and many became friends. I had information and resources!
Today, it’s not the same!
So, in 2015 I established Stroke Recovery Foundation to improve post-stroke lifestyles and outcomes.
Keep in touch for more!